IBD Patient and Family Resources

The Stanford Medicine Children’s Health IBD program offers a self-management handbook for patients and their families called “My IBD Care Book.”

We also encourage patients to sign up for our listserv, which allows you to keep in touch with our community and get the latest news on IBD treatments and therapies. To sign up, please email IBDCeliac@stanfordchildrens.org.

Nuts and Bolts of IBD

About the diagnosis

About diagnostic tests

IBD Treatments

At the Stanford Medicine Children’s Health IBD program, we take an individualized approach for each patient when it comes to therapy. No two individual IBD patients are the same. Based on family- and disease-specific needs, our care team will work with you to find the right balance.

Trouble swallowing pills? Check out Crohn’s & Colitis Foundation’s “I Have to Swallow That? Pill Swallowing Techniques for Kids and Teens” fact sheet.

Need help remembering to take your pills? Here are some tips from Children’s Mercy.

Medications

  • Crohn’s & Colitis Foundation: “Aminosalicylates” (5-ASAs)
    Sulfasalazine, Asacol®, Pentasa®, Lialda®, Apriso™, Delzicol™
  • Crohn’s & Colitis Foundation: “Biologics
    Remicade®, Humira®, Cimzia®, Simponi®, Tysabri®, Entyvio™
  • Crohn’s & Colitis Foundation: “Corticosteroids”
    Prednisone, Entocort, Uceris®
  • Crohn’s & Colitis Foundation: “Immunomodulators
    Azathioprine, Mercaptopurine (6MP), Cyclosporine, Tacrolimus (Prograf), Methotrexate

Drug assistance programs

Diets

Complementary and alternative medicine (CAM)

  • Crohn’s & Colitis Foundation: CAM fact sheet
  • Crohn’s & Colitis Foundation: CAM webcast

Surgery

Diet/nutrition

Living with IBD

Non-gastrointestinal symptoms

  • IBD School with Peter Higgins: “Fatigue

Immunizations

Stress and behavioral health

  • Stanford Children’s Health: “Stress and IBD
  • Crohn’s & Colitis Foundation: “Emotional Factors
  • Crohn’s & Colitis Foundation: “Depression”
  • Crohn’s & Colitis Foundation: “Stress and Anxiety”

Social networking sites and health trackers

For younger children

For teens and young adults

Events and camps

  • Crohn’s & Colitis Foundation: Northern California Chapter
  • Crohn’s & Colitis Foundation: Take Steps for Crohn’s and Colitis
  • Crohn’s & Colitis Foundation: Team Challenge
  • Crohn’s & Colitis Foundation: Camp Oasis
  • Camp Go Beyond

Understanding insurance and IBD