IBD Patient and Family Resources

About the diagnosis

• Crohn’s & Colitis Foundation: “Facts About IBD”
• Crohn’s & Colitis Foundation: “IBS and IBD: Two Very Different Disorders”
• IBD School with Peter Higgins: “Inheriting IBD”
• NIMBAL: “Professor Nimbal Comic”

About diagnostic tests

• For kids: What to Expect from Endoscopy (video) and Cappy’s Greatest Adventure (video, comic)
• For adults: What to Expect from Colonoscopy and About Colonoscopy
• Lab tests online: Understanding IBD Labs

At the Stanford Medicine Children’s Health IBD program, we take an individualized approach for each patient when it comes to therapy. No two individual IBD patients are the same. Based on family- and disease-specific needs, our care team will work with you to find the right balance.

Trouble swallowing pills? Check out Crohn’s & Colitis Foundation’s “I Have to Swallow That? Pill Swallowing Techniques for Kids and Teens” fact sheet.

Need help remembering to take your pills? Here are some tips from Children’s Mercy.

Medications

• Crohn’s & Colitis Foundation: “Aminosalicylates” (5-ASAs)
  Sulfasalazine, Asacol®, Pentasa®, Lialda®, Apriso™, Delzicol™

• Crohn’s & Colitis Foundation: “Biologics”
  Remicade®, Humira®, Cimzia®, Simponi®, Tysabri®, Entyvio™

• Crohn’s & Colitis Foundation: “Corticosteroids”
  Prednisone, Entocort, Uceris®

• Crohn’s & Colitis Foundation: “Immunomodulators”
  Azathioprine, Mercaptopurine (6MP), Cyclosporine, Tacrolimus (Prograf), Methotrexate

• Cincinnati Children's: “Medication Decision Cards”

Drug assistance programs

• For Remicade: Janssen Prescription Assistance
• For Humira: Humira Complete

Diets

• GIKids.org, IBD and Nutrition podcast series: Episode 2: “Enteral Nutrition”
• GIKids.org, IBD and Nutrition podcast series: Episode 3: “Specific Carbohydrate Diet”
• NIMBAL: What is SCD and a nutritionally balanced diet?

Complementary and alternative medicine (CAM)

• Crohn’s & Colitis Foundation: CAM fact sheet
• Crohn’s & Colitis Foundation: CAM webcast

Surgery

• Healthwise Decision Aid: “Ulcerative Colitis: Should I Have Surgery?”

• NASPGHAN: “IBD General Nutrition Information”
• GIKids.org, IBD and Nutrition podcast series: Episode 1: “Maintenance of Good Nutrition”
• Crohn’s & Colitis Foundation: “Diet and Nutrition” brochure
• NASPGHAN: “The Specific Carbohydrate Diet”
• NASPGHAN: “Enteral Nutrition Therapy”

Non-gastrointestinal symptoms

• IBD School with Peter Higgins: “Fatigue”

Immunizations

• NASPGHAN: “Immunizations and Immunosuppression”

Stress and behavioral health

• Stanford Medicine Children’s Health: “Stress and IBD”
• Crohn’s & Colitis Foundation: “Emotional Factors”
• Crohn’s & Colitis Foundation: “Depression”
• Crohn’s & Colitis Foundation: “Stress and Anxiety”

Social networking sites and health trackers

• My Crohn’s and Colitis Team
• Crohn’s & Colitis Foundation: Crohn’s and Colitis Forum
• GI Buddy

For younger children

• Crohn’s & Colitis Foundation: IBD & Me Activity Book
• Crohn’s & Colitis Foundation: Pete Learns All About Crohn’s and Colitis

For teens and young adults

• SickKids: “My Health Passport”
• “Just Like Me! Teens With IBD”
• Crohn’s & Colitis Foundation: “Campus Connection”
• Crohn’s & Colitis Foundation: “Teen Guide”
• Crohn’s & Colitis Foundation: “Young Adults and IBD”

Events and camps

• Crohn’s & Colitis Foundation: Northern California Chapter
• Crohn’s & Colitis Foundation: Take Steps for Crohn’s and Colitis
• Crohn’s & Colitis Foundation: Team Challenge
• Crohn’s & Colitis Foundation: Camp Oasis
• Camp Gut Busters

Understanding insurance and IBD

• Kaiser Family Foundation: “Health Insurance Explained”
• Crohn’s & Colitis Foundation: “IBD Insurance Checklist”