Pediatric Epidermolysis Bullosa (EB) Patient Resources

Information about epidermolysis bullosa (EB)

• Epidermolysis Bullosa (EB) Facts – Frequently asked questions
• Epidermolysis Bullosa – An overview by M. Peter Marinkovich, MD, associate professor of dermatology and director of Stanford's Auto-Immune Blistering Clinic.

Caring for a child with EB

• Basic Care Tips for Epidermolysis Bullosa (EB) - A Parent's Guide (PDF) - Wound care tips for an EB child. Written by EB parent Lorraine Spaulding, edited by Anna Bruckner, MD.
• EB Wound Care Videos - Videos and documents prepared by Stanford

EB organizations and web resources

• Epidermolysis Bullosa Medical Research Foundation (EBMRF)
• Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA)
• DEBRA International

Camps for children with severe skin conditions 

• Camp Wonder - This free summer camp for children with serious skin conditions is organized each year by the Children's Skin Disease Foundation.
• Camp Discovery - Each year, the American Academy of Dermatology sponsors a week-long camp at no cost for children ages 10 to 16 with serious skin conditions.