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Pediatric Cardiomyopathy Program

If your child has been diagnosed with cardiomyopathy or carries a risk of developing cardiomyopathy, we are here to offer expert diagnosis, ongoing treatment, and support. By catching and treating cardiomyopathy early, we can control your child’s symptoms, slow or stop its progress, and avoid complications. Our ultimate goal is to help you and your child live well with cardiomyopathy. Our multidisciplinary team of experts provide care for children with all types of cardiomyopathy from infancy to age 18 and into early adulthood.  

What is cardiomyopathy?

Cardiomyopathy is a progressive chronic disease due to abnormalities of the heart muscle that cause the heart to become unusually weak or stiff, making it difficult for the heart to pump blood efficiently to the rest of the body. There are several types of cardiomyopathy, each with its own symptoms. In cases where the heart isn’t able to pump blood well, children with cardiomyopathy may have pale, sweaty skin and feel fatigue, shortness of breath, chest pain, irregular or rapid heartbeat, dizziness, or fainting, and may be irritable. Some children may feel just fine and have no symptoms despite having cardiomyopathy. Others may have a normal heart but be at risk of developing cardiomyopathy over time. A small group of children may have symptoms of advanced heart failure or serious arrhythmias (abnormal heart rhythms). Childhood cardiomyopathy can occur at any age, but it’s most likely to present itself in a child’s first year of life or during teenage years.

Why Stanford Children’s Health for pediatric cardiomyopathy

At Stanford Children’s Health, we offer the full spectrum of care for your child from a multidisciplinary team of pediatric doctors and professionals with extra training and knowledge in managing pediatric cardiomyopathy. By providing several holistic services and treatments, we empower your child and your family to live your best lives, despite this chronic disease.

Pediatric Cardiomyopathy Program highlights:

Pediatric Cardiomyopathy Care Team

  • Beth D. Kaufman, MD

    Beth D. Kaufman, MDDirector, Pediatric Cardiomyopathy Program

  • Christopher Almond, MD

    Christopher Almond, MDDirector, Clinical Research Pediatric Advanced Cardiac Therapies (PACT)

  • Daniel Bernstein, MD

    Daniel Bernstein, MDHeart Transplantation

  • Chiu-Yu Chen, MDPediatric Advanced Cardiac Therapies (PACT)

  • Sharon Chen, MD

    Sharon Chen, MDPediatric Advanced Cardiac Therapies (PACT)

  • John Dykes, MD

    John Dykes, MDPediatric Advanced Cardiac Therapies (PACT)

  • Seth Adam Hollander, MD

    Seth Adam Hollander, MDAssociate Section Chief, Heart Failure and Pediatric Transplantation

  • Katsuhide Maeda, MD

    Katsuhide Maeda, MDHeart Transplantation

  • Teimour Nasirov, MD

    Teimour Nasirov, MDHeart Transplantation

  • Elizabeth Profita, MD

    Elizabeth Profita, MDPediatric Advanced Cardiac Therapies (PACT)

  • Olaf Reinhartz, MD

    Olaf Reinhartz, MDHeart Transplantation

  • David N. Rosenthal, MD

    David N. Rosenthal, MDDirector, Pediatric Advanced Cardiac Therapies (PACT)

  • Mayra Flores, RNRegistered Nurse Coordinator, Pediatric Advanced Cardiac Therapies (PACT)

  • Jenna Murray, CPNP-AC

    Jenna Murray, CPNP-ACNurse Practitioner, Pediatric Advanced Cardiac Therapies (PACT)

  • Margaret Rosenberg, RN

    Margaret Rosenberg, RNHeart Failure and Transplant Nurse Coordinator

  • Julie Schmidt, CPNP

    Julie Schmidt, CPNPNurse Practitioner, Pediatric Advanced Cardiac Therapies (PACT)

  • Colleen Surmay, NPNurse Practitioner, Pediatric Advanced Cardiac Therapies (PACT)

  • Kari Wujcik, CPNP-AC

    Kari Wujcik, CPNP-ACNurse Practitioner, Pediatric Advanced Cardiac Therapies (PACT)

  • Gerardo EstradaProgram Coordinator

  • Mary CollazoProgram Coordinator

  • Kyla Dunn, MS, LCGC

    Kyla Dunn, MS, LCGCGenetic Counselor