Cardiovascular Connective Tissue Disorders Patient Stories

Issac with family Marfan Syndrome

Isaac was born with Marfan syndrome, a connective tissue disorder that is associated with cardiovascular risks. He is the third generation in his family with this disease; his father and grandfather were also born with it. As Isaac grew older, he began presenting signs of a weakening heart and at age six, he began a complex series of heart surgeries to repair his organ.

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Jordan with Dr. Frank Hanley

Dr. Hanley, who led a marathon, eight-hour surgery reconstructing the pulmonary artery and its branches to Jordan’s heart, is known for tackling some of the world’s toughest and most complex pediatric heart surgeries. For Jordan, this meant correcting his narrowed pulmonary artery and all of its branches.

Learn more about Jordan and the Cardiovascular Connective Tissue Disorders Program >