Epidermolysis Bullosa Multispecialty Clinic

Living with epidermolysis bullosa (EB), a rare skin condition, can be very challenging and painful. Children and young adults with EB often suffer from blisters and chronic, open wounds throughout their lifetimes.

Care providers and scientists at Stanford Medicine are committed to improving the health and quality of life for people with epidermolysis bullosa. We combine compassionate care with new research and innovative treatments, and we place you/your child at the heart of our care through a family-centered approach. Our Epidermolysis Bullosa Multispecialty Clinic team cares for children of all ages and young adults, and we collaborate with dermatologists (skin doctors) at Stanford Health Care to ensure a seamless transition of care.

Why choose us for epidermolysis bullosa pediatric care

  • We are a national destination for patients with epidermolysis bullosa. Stanford Children’s has a worldwide reputation for exceptional epidermolysis bullosa care. Started in 1970, our dedicated clinic was one of the nation’s first to focus on epidermolysis bullosa. We bring together state-of-the-art care, research that leads to new treatments, education, and advocacy—to make sure that you/your child receive the very best care with your family at the center.
  • We offer cutting-edge epidermolysis bullosa treatments, developed at Stanford Medicine. Our doctor-scientists have dedicated countless hours over decades to finding a cure for recessive dystrophic epidermolysis bullosa (RDEB), the most severe form of epidermolysis bullosa. Their constant efforts led to a groundbreaking, FDA-approved skin graft therapy. Lucile Packard Children’s Hospital Stanford was the first hospital to provide this life-changing therapy and is one of a few approved sites worldwide to offer it. Before this treatment breakthrough, our team's research led to another effective gene therapy—a topical gel.
  • We provide comprehensive, multidisciplinary care for children of all ages and young adults. Starting at birth, we support every aspect of your/your child’s health and well-being. Severe epidermolysis bullosa can impact more than just the skin, affecting many organs and disrupting daily life. At each care visit, you/your child will be cared for by many specialists who provide tailored, whole-person, comprehensive care.