Patient & Family Resources
General rare disorder support
- Citizens United for Research in Epilepsy
- Genetic and Rare Diseases Information Center
- National Organization for Rare Disorders
- The Epilepsy Foundation
- Unique: The Rare Chromosome Disorder Support Group
For metabolic conditions such as leukodystrophies or mitochondrial disorders, please visit the Neurometabolic Clinic’s “Patient and Family Resources” page.
