IBD Patient and Family Resources

The Stanford Medicine Children’s Health IBD program offers a self-management handbook for patients and their families called “My IBD Care Book.”

We also encourage patients to sign up for our listserv, which allows you to keep in touch with our community and get the latest news on IBD treatments and therapies. To sign up, please email Megan Christofferson.

Recommended resources

About the diagnosis

About diagnostic tests

At the Stanford Medicine Children’s Health IBD program, we take an individualized approach for each patient when it comes to therapy. No two individual IBD patients are the same. Based on family- and disease-specific needs, our care team will work with you to find the right balance.

Trouble swallowing pills? Check out Crohn’s & Colitis Foundation’s “I Have to Swallow That? Pill Swallowing Techniques for Kids and Teens” fact sheet.

Need help remembering to take your pills? Here are some tips from Children’s Mercy.


  • Crohn’s & Colitis Foundation: “Aminosalicylates” (5-ASAs)
    Sulfasalazine, Asacol®, Pentasa®, Lialda®, Apriso™, Delzicol™
  • Crohn’s & Colitis Foundation: “Biologics
    Remicade®, Humira®, Cimzia®, Simponi®, Tysabri®, Entyvio™
  • Crohn’s & Colitis Foundation: “Corticosteroids
    Prednisone, Entocort, Uceris®
  • Crohn’s & Colitis Foundation: “Immunomodulators
    Azathioprine, Mercaptopurine (6MP), Cyclosporine, Tacrolimus (Prograf), Methotrexate

Drug assistance programs


Complementary and alternative medicine (CAM)


Non-gastrointestinal symptoms

  • IBD School with Peter Higgins: “Fatigue


Stress and behavioral health

Social networking sites and health trackers

For younger children

For teens and young adults

Events and camps

Understanding insurance and IBD