IBD Patient & Family Resources

The Stanford Children’s Health IBD Center offers a self-management handbook for patients and their families called “My IBD Care Book.

We also encourage patients to sign up for our listserv, which allows you to keep in touch with our community and get the latest news on IBD treatments and therapies. To sign up, please email Megan Christofferson.

Nuts and Bolts of IBD

About the diagnosis

About diagnostic tests

IBD Treatments

At the Stanford Children's Health IBD Center, we take an individualized approach for each patient when it comes to therapy. No two individual IBD patients are the same. Based on family- and disease-specific needs, our care team will work with you to find the right balance.

Trouble swallowing pills? Check out CCFA's “I Have to Swallow That? Pill Swallowing Techniques for Kids and Teens” fact sheet.

Need help remembering to take your pills? Here are some tips from Children's Mercy.

Medications

  • CCFA: “Aminosalicylates”(5-ASAs)
    Sulfasalazine, Asacol®, Pentasa®, Lialda®, Apriso™, Delzicol™
  • CCFA: “Biologics
    Remicade®, Humira®, Cimzia®, Simponi®, Tysabri®, Entyvio™
  • CCFA: “Immunomodulators
    Azathioprine, Mercaptopurine (6MP), Cyclosporine, Tacrolimus (Prograf), Methotrexate

Drug assistance programs

Diets

Complementary and alternative medicine (CAM)

Surgery

Diet/nutrition

Living with IBD

Non-gastrointestinal symptoms

  • IBD School with Peter Higgins: “Fatigue

Immunizations

Stress and behavioral health

Social networking sites and health trackers

For younger children

For teens and young adults

Events and camps

Understanding insurance and IBD