References

The following open source references provide information and research regarding family-centered care, parent-to-parent support, and self-management interventions. Open source means these articles are publicly available, and you can find them by searching the title or authors on Google Scholar.

Open source

1. Raphael JL, Rueda A, Lion C, Giordano TP.  The role of lay health workers in pediatric chronic disease: a systematic review. Academic Pediatrics. 2013;13(5):408-420.

2. Bower P, Kennedy A, Reeves D, et al. A cluster randomised controlled trial of the clinical and cost-effectiveness of a ‘whole systems' model of self-management support for the management of long-term conditions in primary care: trial protocol. Implement Sci. 2012;7(1):1-13.

3. Modi AC, Pai AL, Hommel KA, et al. Pediatric self-management: a framework for research, practice, and policy. Pediatrics. 2012;129(2):e473-e485.

4. Ljungberg I, Kroll T, Libin A, Gordon S. Using peer mentoring for people with spinal cord injury to enhance self-efficacy beliefs and prevent medical complications. J Clin Nurs. 2011;20(3-4):351-358.

5. Sullivan-Bolyai S, Bova C, Lee M, Gruppuso PA. Mentoring fathers of children newly diagnosed with T1DM. MCN Am J Matern Child Nurs. 2011;36(4):224-231.

6. Sullivan-Bolyai S, Bova C, Leung K, Trudeau A, Lee M, Gruppuso P. Social support to empower parents (STEP). Diabetes Educ. 2010;36(1):88-97.

7. Flores G, Bridon C, Torres S, et al. Improving asthma outcomes in minority children: a randomized, controlled trial of parent mentors. Pediatrics. 2009;124(6):1522-1532.

8. Bethell CD, Read D, Blumberg SJ, Newacheck PW. What is the prevalence of children with special health care needs? Toward an understanding of variations in findings and methods across three national surveys. Matern. Child Health J. 2008;12(1):1-14.

9. Rogers A, Kennedy A, Nelson E, Robinson A. Uncovering the limits of patient-centeredness: implementing a self-management trial for chronic illness. Qual Health Res. 2005;15(2):224-239

10. Kerr SM, McIntosh JB. Coping when a child has a disability: exploring the impact of parent‐to‐parent support. Child Care Health Dev. 2000;26(4):309-322.

11. Santelli B, Turnbull AP, Marquis J, Lerner EP. Parent to parent programs: a unique form of mutual support. Infants & Young Children. 1995; 8(2):48-57.

12. Ireys HT, Sills EM, Kolodner KB, Walsh BB. A social support intervention for parents of children with juvenile rheumatoid arthritis: results of a randomized trial. J Pediatr Psychol. 1996;21(5):633-641.

13. Ainbinder JG, Blanchard LW, Singer GH, et al. A qualitative study of parent-to-parent support for parents of children with special needs. J Pediatr Psychol. 1998;23(2):99-109.

14. S. Singer GH, Marquis J, Powers LK, et al. A multi-site evaluation of parent to parent programs for parents of children with disabilities. J. Early Interv. 1999;22(3):217-229.

15. Brewer Jr EJ, McPherson M, Magrab PR, Hutchins VL. Family-centered, community-based, coordinated care for children with special health care needs. Pediatrics. 1989;83(6):1055-1060.